Hi everyone. As many of you may or may not know, I lost my beautiful mother, Janelle, in March this year to Creutzfeldt-Jakob disease (CJD). She was an amazing mother, wife, sister and friend. She was courageous, determined, and very spunky. She could always make you laugh. Losing her to this disease, that took her mother too, was one of the most devastating things to happen to us and everyone who loved her. She was taken too young.
CJD is a prion disease affecting the brain. It is an extremely rare degenerative disease, affecting only 1 in a million per year, with genetic cases only being 10-15% of those cases. Unfortunately there is no treatment or cure currently for this disease.
November is CJD awareness month, with the 12th November being International CJD Awareness Day. I am aiming to raise funds towards the CJD research group to provide financial support, not only to help further research into a potential treatment or cure for CJD, but also to provide support to families to navigate life after losing someone to this disease.
If you would like to make a donation, big or small, all proceeds will go to CJD Support Group Network and the Research team at Melbourne University.
Thank you for taking the time to read this, and thank you to those who have been here for us through this journey.
The CJDSGN offers support, information and assistance for family members and friends of patients suffering with suspected CJD and other prion disease and for those at increased risk of developing CJD.
About Fundraiser
Lucy Gill
NEW LAMBTON HEIGHTS, NSW
Sat, 3 Dec 2022
Ian Gill
$ 100
Janelle will never be forgotten and will remain in our hearts forever...
The CJDSGN offers support, information and assistance for family members and friends of patients suffering with suspected CJD and other prion disease and for those at increased risk of developing CJD.
Janelle will never be forgotten and will remain in our hearts forever...