The month of October is 'Rett Syndrome Awareness Month.' Everyday for the month of October, I am challenging myself to walk a minimum of 5k a day. I will also be selecting 1 day in October to go speechless for 24hrs and only communicate with simple terms through cards. I am choosing to raise funds for the Rett Syndrome Association of Australia in honor of my beloved sister, Annelise- who lives with Rett Syndrome. Children who have Rett Syndrome often lose that freedom of mobility, some can walk independently or with assistance, some lose their ability to walk in time, some never walk again but others regain their ability to walk. Annelise only started to walk when she was 3 years old. At age 8 Annelise lost her ability to walk independently due to the progression of scoliosis a common symptom of Rett Syndrome. in the past 3 years Annelise has endured two major spinal surgeries and with whole heap of physio and pure determination, Annelise is regaining her ability to walk. We are hopeful that one day Annelise will once again have the freedom to walk independently.
Formed in Melbourne in July 1989, the Rett Syndrome Association of Australia Inc. (RSAA) is a not-for-profit organisation which is managed by a Committee of volunteers, most of whom are parents of Rett syndrome children. RSAA is currently working on running clinical trials in Australia.
About Fundraiser
Te Buda
ST MARYS SOUTH, NSW
Wed, 6 Oct 2021
Uren Family
$ 30
Wed, 6 Oct 2021
Lang & Kenzie
$ 50
Sat, 2 Oct 2021
Kayla & Terri. We are so proud of you ?
$ 50
Sat, 2 Oct 2021
caroline fitzpatrick
$ 30
Go for it Team Annelise XO
Fri, 1 Oct 2021
Goldie Chatto
$ 30
Sun, 26 Sep 2021
Ray Alyson
$ 50
Miss you guys.
Sat, 25 Sep 2021
Brett Anslow
$ 20
Very proud of you Tina for committing to this very important cause!
Thu, 23 Sep 2021
Ginetta Pennisi
$ 50
Sat, 18 Sep 2021
Pauline Biboudis
$ 50
Great job Tina! I'll be doing it too with you. Good Luck ?
Formed in Melbourne in July 1989, the Rett Syndrome Association of Australia Inc. (RSAA) is a not-for-profit organisation which is managed by a Committee of volunteers, most of whom are parents of Rett syndrome children. RSAA is currently working on running clinical trials in Australia.
Go for it Team Annelise XO