Raising Money in Memory of our beautiful boy Jackson Thomas who died at 13 months of VWM.

Hi all,
My husband and I went through one of the hardest times when we found our there was something wrong with our youngest.
Jackson was having seizures without us knowing that what they where. Every doctor told us it was just a virus and he would be okay. At 5 months we has the words spoken to us that I will never forget.... your son is terminal we are not sure why yet.
From there on it was constant hospital visits and stays and constant care around the clock for us to make sure we could keep him as long as possible. Been told your baby will probably not make it to their 1st birthday are words no parents want to hear.. these words rang in my ears constantly. We got him to his first birthday on Nov 11th and felt such a joy but it was short lived as 2 days after his birthday we where rushed to hospital where he passed away on the 23rd of December 2015.
It took nearly a whole year to find out why this happened and we got the diagnosis of VWM.
I will be swimming 21km for my beautiful boy on the 23rd of December and I would love for people to donate to this cause that is so close and dear to me.