Hunt for a Cure - fundraiser for research into Huntington's disease
$20,914 raised
TARGET $15,000
Please support this cause
$
AUD
About
Dear friends
The fundraising group Hunt for a Cure, with the support of Huntington’s Victoria, is raising awareness and much needed funding for research into Huntington’s Disease (HD).
About HD
HD is a rare, genetic condition that affects the brain, worsening over time. Unfortunately there is no cure or effective treatment for this disease and therefore HD remains fatal. The onset of symptoms typically occur when a person is in their 20’s, 30’s, and 40’s with death occurring 10-20 years after the initial onset of symptoms. Symptoms include changes to a person’s thinking, feeling, movement, communication, personality and behaviour. Despite advances of global research efforts, an effective treatment and cure for patients has yet to be found.
Our aim
Our ultimate goal is to raise over $50,000 to support the future of HD research which will be held in trust by Huntington’s Victoria and be released for HD research projects. We are raising funds through direct donations and fundraising events to be held throughout the year. This goal is very important to me as I come from a HD family so I have observed the impact of the disease on loved ones and those who care for them.
How you can help
You can support the future of HD research in a number of ways including donating to through this page or by letting your hair down and having fun at our Lazy Sunday Afternoon event. Bring your friends and family and join us for some music, finger food, raffles and prizes.
Find out more below
Hunt for a Cure - Lazy Sunday Afternoon Date: 5 May 2019 2-6pm Address: The Grand Hotel, L1 Function Room, 110 Yarra St Warrandyte (lift access available)
Tickets: $50 (+ small booking fee includes - finger food, entertainment and door prizes – drinks not included) Tickets available via: http://bit.ly/H4aCLSA RSVP: 25 April 2019 (preferable to confirm numbers) Questions: nickpwalsh@gmail.com
Thank you for your support,
Nick Walsh for Hunt for a Cure - Lazy Sunday Afternoon Fundraising Committee
Huntington's Victoria assists to improve the quality of life of all people touched by Huntington's Disease in Victoria by connecting families to the vital support and services they need, whilst supporting people affected by Huntington's Disease to live meaningful and hopeful lives as valued members
NW
About Fundraiser
nick walsh
S, VIC
Sun, 30 Jun 2019
Justine Engdahl
$ 100
For the Walsh family! xxx Justine and Johnny
Fri, 31 May 2019
Ian and Penny Ash
$ 100
Fri, 24 May 2019
Anonymous
$ 150
Fri, 10 May 2019
Lisa Ring
$ 100
Good on you, Nick, for raising awareness of Huntington’s Disease and for raising money to continue research in order to find a cure. Sorry that I couldn’t make the event. I hope that you all had a fantastic time. Lisa xx
Wed, 8 May 2019
Jason Brun
$ 120
Wed, 8 May 2019
Janine Christenson
$ 50
What an amazing family!
Wed, 8 May 2019
Liz Dillon
$ 100
Our beautiful neighbours the Walshes in Kyabram are amazing community minded people . Well done Nick and team for a great fundraiser May there be many more but may there not be a need for a fundraiser one day soon x
Tue, 7 May 2019
Emma Gordon
$ 20
Tue, 7 May 2019
M Rizzi
$ 100
Sorry we couldn't be there. lots of love and best wishes, Michelle & Justin Rizzi
Huntington's Victoria assists to improve the quality of life of all people touched by Huntington's Disease in Victoria by connecting families to the vital support and services they need, whilst supporting people affected by Huntington's Disease to live meaningful and hopeful lives as valued members
For the Walsh family! xxx Justine and Johnny