Imagine being told at the age of just 15 you will lose your ability to see.
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A humbling thought isn't it?
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That is unfortunately what Kye, our brave young man has been told and the reality of living in between the blind and sighted world is both a scary and frustrating one of equal measure. Kye was recently diagnosed with the genetically transmitted disease, known as Retina Pigmentosa (or RP).
Coming to terms with this sight loss diagnosis will no doubt be a challenge no young person should have to face. We would like to help take a financial burden off Kye and his family so this page has been created to help raise funds for the ongoing medical costs and to allow Kye and his Mum to travel to the States for further medical advice and to also fulfill Kye's travelling dreams whilst he is still able to enjoy the sights that our amazing planet has to offer.
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Not only will this allow them access to advanced medical advice and treatment, it will also allow Kye to take a permanent picture of as many wonders of the world as possible, so that he can always treasure those visual memories forever.
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ABOUT RETINA PIGMENTOSA
Retinitis Pigmentosa is a very rare eye condition.
The genetically transmitted disease, which is usually diagnosed in teenagers, affects the light-sensitive nerve tissue lining the back of the eyes.
For more detailed information about this condition you can read more at this site. https://nei.nih.gov/health/pigmentosa/pigmentosa_facts
Kye has been diagnosed with Retina Pigmentosa, a very rare eye condition that is genetically transmitted. This page has been created to help raise funds to allow Kye and his Mum to travel to the USA for further medical advice and to allow Kye to enjoy some sights of the world whilst he is still able
Funds Banked To
Kye Sheldon Portelli
Campaign Creator
Team Kye Portelli
SCARBOROUGH, WA
Tue, 21 Jan 2020
Charlotte Anderson
$ 30
Fri, 4 Jan 2019
Newman College
$ 688
Dance Off Newman College funds raised
Mon, 31 Dec 2018
Nav Dhaliwal
$ 200
Sat, 24 Nov 2018
Catherine Muhic
$ 150
Sending all our love to Kye and family
Love from Auntie Cath, Uncle Trevor, Damon & Lisa xxxx
Thu, 22 Nov 2018
Marnie Bell
$ 100
Sending loads of love to you all.
Gav, Marnie, Josh, Mitch & Ruby Bell xxoo
Kye has been diagnosed with Retina Pigmentosa, a very rare eye condition that is genetically transmitted. This page has been created to help raise funds to allow Kye and his Mum to travel to the USA for further medical advice and to allow Kye to enjoy some sights of the world whilst he is still able
Dance Off Newman College funds raised