Fibrodysplasia Ossificans Progressiva or FOP for short, is an ultra rare genetic condition for which there is currently no cure. It is one of the rarest, most disabling genetic conditions known to medicine, causing bone to form in muscles and other soft tissue. Whenever extra bone is formed across joints it permanently restricts movement.
Our connection to this community is through our brother/son - Ollie. Diagnosed at just 18 months of age, Ollie has been living with this debilitating, progressive condition for over 2 decades.
We aim to raise much needed funds to be put towards research into finding a cure for FOP. Any and all support received is very much appreciated - no donation is too small!
FOP is one of the rarest, most disabling genetic conditions known to medicine, causing bone to form in muscles and other soft tissue. Whenever extra bone is formed across joints it permanently restricts movement. It is a progressive disease and there is no cure.
E&GC
About Fundraiser
Ellie & Gerry Collins
New Far, QLD
Tue, 28 Aug 2018
Tara O’Kane
$ 20
Tue, 28 Aug 2018
Robyn Rowe
$ 200
Mon, 27 Aug 2018
Prue
$ 100
Mon, 27 Aug 2018
Brittney Kane
$ 50
Mon, 27 Aug 2018
Gabby Kelly
$ 50
Love you Ollie!
Mon, 27 Aug 2018
Ellie Collins
$ 50
Very grateful for all the support from everyone! Love you Ollie!
FOP is one of the rarest, most disabling genetic conditions known to medicine, causing bone to form in muscles and other soft tissue. Whenever extra bone is formed across joints it permanently restricts movement. It is a progressive disease and there is no cure.
Love you Ollie!