Nyree Saxby

$2,085 raised

TARGET $2,000

Please support this cause

AUD

I was astonished when Emily Turner called me saying she had exciting news....that her mum Angela and their close group of friends had decided to do a 100km “Walk for Chloe” to raise money for VWM disease. Only 2 months prior her dad Richard and his close group of friends had ridden from Melbourne to Wollongong in the “Ride for Chloe”, raising over $170,000 for VWM disease.

Every single day I see my youngest daughter Chloe in pain and I know that what she is experiencing now is nothing compared to what is to come for her if a cure for VWM disease is not found in time.

After being completely healthy until the age of 3, overnight Chloe lost the use of her legs and after 8 months of testing, she was diagnosed with Vanishing White Matter Disease, an extremely rare, degenerative and terminal brain disease. A bump to the head, high temperature, cold/ flu, stress or fright could kill Chloe. She is now confined to a wheelchair and VWM will next paralyse her little body to the point where she won’t be able to hold her head up, talk, see hear or eat. She already has seziures and she will experience a lot of pain and suffering and die at a very young age if the cure is not found.

Unfortunately I’m not a scientist or a researcher, I am just Chloe’s mum...but I will do everything I possibly can including walk 100kms to raise the money to accelerate the cure for VWM disease to save Chloe and hundreds of other children around the world. I will never stop fighting for you my sweetheart.

Chloe Saxby and Vanishing White Matter Disease Incorporated

With your help we can save Chloe Saxby and end this devastating disease for all children. This cure is within reach, but we are in a race against time. All funds raised go to advancing this life saving research for a cure for Vanishing White Matter Disease. Tax Deductible Receipts provided

Wed, 16 May 2018

Nyree Saxby

$ 105

I am sponsoring myself $1 for every kilometre I walked in the Walk for Chloe - I love you more than the moon, stars, sun and the blankets, rivers and the oceans, streams and the waterfalls, dams and the ponds and I would do anything to save you my beautiful girl

Wed, 16 May 2018

Margie Burling

$ 105

Dearest Nyree and Family Congratulations on the amazing fundraising walk. You, Nicole and your whole family are nothing short of extraordinary! Nyree, draw strength from the fact that each step you took brought you closer to finding a cure for your precious Chloe & those suffering from VWM. These brilliant scientists you are funding WILL find a cure. All our love Margie & the whole Burling family xx

Fri, 11 May 2018

Tyler Hallal

$ 845

8 year old Tyler gave up $845 worth of birthday presents from his birthday on Saturday to help save Chloe, Holly and others with VWM disease - he wanted to donate it to all of the ladies that participated in the 100km Walk for Chloe in Melbourne on the weekend! Tyler asked his family and friends not to bring presents and to donate to the Saving Chloe Saxby charity instead! Thank you to the following beautiful children and their generous parents..Joshua, Ryan, Vishaal, Tyler L, Floyd, Tobias & Xavier, Kaj, Harrison, Jonathon, Evie, Clara, Liam, Ideen & Mateen and to Tyler's family. It was only 2 months ago that Tylers little sister Chloe did exactly the same thing for her birthday, donating $750 to help Chloe! Alan and Skye, thank you for raising such beautiful, caring little souls xxxx

Sat, 5 May 2018

Anonymous

$ 500

Sat, 5 May 2018

Renee Williams

$ 50

You are awesome xx

Fri, 4 May 2018

Andromeda Lembo

$ 30

Good luck- you are currently walking and I’m sending you love hugs and support - you all are amazing xxx

Fri, 4 May 2018

Nestorovic Family

$ 30

Thinking of you and your poor feet. As always your dedication to helping find a cure for the monster VWM is a force powered by love for the lovely Chlo.

Fri, 4 May 2018

The Hughes’

$ 50

So proud

Fri, 4 May 2018

J Maher

$ 50

Wed, 2 May 2018

Natasha Adami

$ 50

Good luck Nyree, can’t wait to hear all about your walk, sending lots of love and positive vibes Natasha Adami

CREATOR Nyree Saxby

SINCE Apr 2018

Donations

MY BADGES

50% raised

Target reached

$2,085 raised

TARGET $2,000

Please support this cause

AUD

Fundraising For

Chloe Saxby and Vanishing White Matter Disease Incorporated

CREATOR Nyree Saxby

SINCE Apr 2018

Donations

MY BADGES

50% raised

Target reached