Working in Clinical Research I am often involved in studies where there is a lot of funding. Hearing more about Vanishing White Matter Disease and the lack of funding I felt devastated for all those affected and their loving families and friends.
I was made aware of Chloe's story through an old friend on the morning of Tuesday Jan 9th. By that evening I had joined and recruited +1!
That Wednesday I started training and knew that I was going to take on the challenge of walking the 100km with excitement knowing I CAN and WILL make a difference!
Your support and donation will go a long way towards making a difference to all the families wirh Vanishing White Matter Disease.
My personal goal is to raise $1000
Well done Pip, saw you guys on the news tonight, such a courageous little girl! Devastating disease that desperately needs a cure, brilliant effort by you guys!!