The Mills Sisters

 
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GOAL $4,100
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since May 2017
 
 

       HELP US REACH OUR FINANCIAL MEDICAL GOAL.

 

         Financial Help Urgently Needed For Hugh Medical

       Expensive By Leanna and Bethany MILLS and Future        

       Living Accommodation.

 

 

Dear Friends of Leanna and Bethany,

 

$ 4,077-10 Needed URGENTLY for HCF medical cover for one year, as the unique special need major Brain Surgery that is required on going, can only be preformed by a couple of leading Brain Specialists in Sydney, but they will only operate in a private Hospital, and not a public Hospital, PLEASE HELP US WITH LEANNA AND BETHANY MEDICAL

                                                                                                  PLIGHT.

 

 

Imagine that as a young adult you couldn’t leave your home without help.

 

Imagine you were unable to move freely, needing surgically implanted electrical impulses connected to your brain to reduce the enormous and agonizing pain from frequent muscle contractions and spasms.

 

Imagine that every day was a Hugh struggle just to stay alive.

 

These are the realities for sister’s 23 year old Leanna and 21 year old Bethany Mills, each suffering the same incurable illness. Doctors refer to their personal medical symptom as having Parkinson, Primary Dystonia and Generalize Dystonia, a progressive, degenerative neurological illness. It causes excruciating muscle pain, restricted body movement and severe spasms. For Leanna this is complicated by Parkinson Disease getting worse.

 

Despite the difficulty of frequent hospitalization to access medical care from key leading brain specialists in Australia, enduring the stress of travel to France in 2005 so both daughters could have a major, but delicate brain surgery called

( DBS) Deep Brain Stimulation, and also seeing leading Brain specialists in London and the US. Leanna and Bethany have traveled to French specialists about 16 times, London specialists about 10 times and New York specialist one time. The future for these wonderful and courageous young women is bleak. With an uncertain future, it has been challenging to provide them with the constant support they urgently need which is often expensive and difficult to access.

 

The two sisters are the only human beings in the whole World 

 with these unique personal medical symptoms”

 

With a loving family, an irrepressible positive attitude, and the support of friends, celebrities, high profile business people, service groups and unknown benefactors, Leanna and Bethany have benefitted over the years from support of people from many walks of life. The tireless fundraising efforts co – ordinated by the Mills family have resulted in some positive outcomes that have improved their quality of life.  

 

Recently, Leanna and Bethany gained the use of a special vehicle that has enabled them to leave the confines of their home to attend their frequent medical appointments more easily when their health lets them. It has also enabled them to take some short trips locally to enjoy the wider community that the rest of us generally take for granted.

 

But the limitations of currently renting a purpose-built home mean that as their illness progresses, there is a greater need to buy or build a similar home that will house specialized equipment and facilities. This will assist the family to cope with the increasing physical demands of caring for two seriously ill young women and provide Leanna and Bethany with the dignity they deserve in battling this debilitating disease.

 

But the limitations of currently renting a purpose-built home means that as their illness progresses, there is a greater need to buy or build a similar home that will house specialized equipment and facilities. This will assist the family to cope with the increasing physical demands of caring for two seriously ill young women and provide Leanna and Bethany with the dignity they deserve in battling this debilitating disease.

Their own home will take away the ongoing worry of what will happen if these young women and their family have to move and how will they survive without specialized equipment and facilities, for the rest of their lives.

 

Because of the rarity of both daughter’s illness they have two main brain specialists in Sydney regularly treating the girls privately, and only in private hospitals. This also adds to the financial costs of providing them with the only remaining medical assistance available. Overseas resources have been exhausted, and the trauma of travelling overseas with a serious illness is now too great for this to be an option.

 

 

 

Leanna and Bethany don’t want to be put into full time care for the rest of their lives. They want to live a normal life if possible, with having good and happy times with their loving family

 

They rely entirely on the generosity of people like you. Your tax deductible gift will directly influence their quality of life at home where their illness can be best managed by family and local services.

 

Without your financial help, all the gains of the last few years could evaporate. Your financial contribution will give them a future of hope and you will know that you have made a big difference to these two young lives who scratch and crawl on their journey through the unknown territory of this unique illness. 

                                                          


Leanna and Bethany are a Registered Charity.

 

Leanna & Bethany Primary Dystonia with DBS Charity Foundation Pty Ltd.

ABN Number is: 69 010 820 746


 

Thanks for reading my daughter story.

 

Please help us with an Urgent financial donation.

 

Thanks, Nic MILLS (  father – Australian Mobile is - 0417 657 120 )

                                      

$0 raised
0%
GOAL $4,100
0 donations
 
since May 2017
 
Fundraising for
Leanna & Bethany Primary Dystonia
Australian sisters Leanna and Bethany Mills are the only known children to be diagnosed with the rare incurable disorder, primary dystonia featuring their unique symptoms; a painful mixture of cerebral palsy and Parkinson’s disease causing their entire body to twist into abnormal positions.

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