A beautiful friend of mine has an 8 year old boy who has just been diagnosed with Leukodystrophy. It is a degenerative neurological condition without a cure and with very few treatment options. Once the symptoms present, the degeneration can be quite aggressive. They only have a short amount of time left with him. The medical bills will be ongoing and they will eventually need in home support or even around the clock medical care. These current and future costs make it difficult to take special vacations while they still have the chance and while their son is still able to enjoy these experiences. The difficulty with this particular fundraising campaign is that we don't want the child to ever find out that he has such a limited amount of time left which is why I have not attached a picture. Please exercise discretion if you know or make contact with this family. Time is of the essence. Thanks in advance for your support X http://ulf.org/adrenoleukodystrophy
Leukodystrophy is a degenerative neurological condition without a cure and with very few treatment options. Please make a donation and contribute to the experiences and medical support for this sweet little boy.
Funds Banked To
Rob and Simone Stevenson
EN
Campaign Creator
Eleisha Neilson
Hampton , VIC
Sat, 23 Dec 2017
Karen White
$ 50
Tue, 18 Jul 2017
Michele Francis
$ 200
M and R Francis with our love ❤️
Mon, 19 Jun 2017
Mat Smith
$ 250
Fri, 16 Jun 2017
Lily Porter
$ 50
Donating on behalf of Lily Porter
Tue, 13 Jun 2017
CCA Geelong - Retail Team
$ 348
Rob, Simone. Beau and Coco. the way you have met this is truly inspirational. Such a positive attitude despite the circumstance. Here the CCA Geelong Retail team's small contribution to helping you out.
Thu, 8 Jun 2017
Brett Johanson
$ 100
Best of Luck Rob & Simone and hope you reach your goal.
Fri, 2 Jun 2017
Russell & Allison Flint
$ 100
Our best wishes Rob, Simone, Beau and Coco, sorry we couldn't make it yesterday.
Fri, 2 Jun 2017
Michelle Willoughby
$ 40
Much love for a gorgeous family x
Fri, 2 Jun 2017
Flora Di Medio
$ 200
Our Best Wishes to the Family Love Flora, Frank and Francesco
Leukodystrophy is a degenerative neurological condition without a cure and with very few treatment options. Please make a donation and contribute to the experiences and medical support for this sweet little boy.
M and R Francis with our love ❤️