Izabel's Journey

$365 raised

From 4 Donations

TARGET $50,000

Please support this cause

AUD

Raising funds for: Izabel Sullivan

Izabel Skye Sullivan is my beautiful, funny, happy, caring, kind, cheeky 4 year old Niece. Recently, my sister who lives in Perth, and her family received the most devastating news, Izabel was diagnosed with a brain tumour called medulloblastoma, which is a high grade malignant tumour. The tumour was removed and a permanent shunt was put into her brain to remove fluid and pressure. Unfortunately, Izabel suffered a stroke and seizures during this process, which has been extremely upsetting to see. She has just started a very long journey to have 6 weeks of aggressive radiation and months of chemotherapy. The doctors have said this is going to be a life long fight. My daughter Hannah and I flew to Australia to be with Izabel and her family through the initial weeks supporting them in any way we could. It was heartbreaking to see Izabel so ill. She has two sisters and a brother at home who are all understandably terrified for their baby sister. Izabel's father Adam has had to leave his job so he can be at the hospital with my sister Zoe & Izabel and also care for her siblings at home as there are no other immediate family living in Australia. Izabel cannot eat, walk or talk yet and it's uncertain whether she can see. She has some movement in her arms and legs, and has been trying to move her head. She has even managed to smile lately and giggles when we tickle her. No one, let alone a parent should ever have to face this traumatic ordeal. Izabel is fighting for her life , but she is strong. We are hopeful she will end this journey and remain the happy, caring, kind, funny, cheeky girl that she is. As a family we are devastated and urge anyone to please, if they can, donate any amount, no matter how small to help my sister and her family financially through this journey. Izabel will require life long care after the treatment and will need specialist equipment to help with her care. The home will need to be modified and they will need a car with wheelchair hoist. Any amount would be so gratefully received. We hope and pray Izabel can one day write her own thank you letters to everyone who can support this fund. Xxx

Update

14 Aug 2017

Hello Time for an update on my beautiful niece Izabel. Izabel is doing very well and has just been given the all clear from her last MRI. The scans are so stressful for everyone and hearing this wonderful news puts a smile on our faces. She will continue to have scans every 3 months. My sister, Izabel and family came to the U.K. in June for 3 weeks and what a wonderful time it was too. Izabel got to meet everyone near and dear to them and zoe caught up with friends for some much needed support. My family spent a week with them all, making precious memories. Izabel and Maisie (my daughter) got on so well and spent a lot of time having fun, doing each other's make up and glitter tattoos, pottery and swimming. We had a super time together. Izabel laughed every single day proving what a tough little girl she really is. She is getting her little sparkle back and is quite cheeky too, She charged me £10 for a cuddle haha. Izabel was exhausted but she always had fun. Unfortunately, the airline buckled her wheelchair beyond repair so this has set the Sullivan's back as they now need to save for a new one. Izabel now has her very own adapted bike and is actually peddling it herself, very proud Auntie moment seeing her do that. She has also been to an adapted horse riding lesson, which she loved, but this is only going to be on special occasion as the fees are too expensive. Zoe is now selling the family car as they need a specially adapted car to cater for Izabel's needs. They are currently having to hire one from 'wheels of hope' who specialize in disability vehicles. Sadly, Izabel has had numerous water infections recently and a scan of her kidneys shows possible damage from the chemotherapy. Even with this, she is a true warrior and continues to fight this journey. You can see the determination in her when she wants to do something. She tries so so hard to achieve. I know she will continue making progress and is getting stronger by the day. Even tho she has had multiple diagnosis including brain fatigue, cerebral palsy, sleep apnea and deterioration of her eyesight in one eye, (she now has to wear a patch). She still has to have thickened fluids as she is at high risk of aspiration and could choke as her swallow issues remain, but she continues to progress and she definitely doesn't give in. I would like to say thank you for everyone's continued support and generosity donating to Izabel's journey, without your donations she wouldn't have the Bike she has now and wouldn't of been able to have her riding lesson or water therapy, and the family would have struggled more than they needed to. Although Izabel is making progress she needs lifelong 24/7 care and continuous rehab so any donation is always greatly received and appreciated. If you would like to follow Izabel's progress she has a Facebook page where regular photos and updates are made. https://m.facebook.com/Izabelsullivan/ Thank you once again, without caring people like you, little Izabel would have suffered more than she needed to. For that I am eternally grateful. Kind regards Louise Jones

Update

08 May 2017

Hello It's time for an update on the beautiful Izabel as it's been a while since the last one. And it's now been a year since her diagnosis. Izabel is doing so so well, she has now has 2 clear mri scans since she finished her treatment. Although Zoe has said chemo is like 'the gift that keeps giving' She has now been diagnosed with ataxia cerebral palsy due to nerve damage and has selective mutism, she is still unable to walk, sit or stand alone. Being the total star she is, it hasn't stopped her from trying her hardest and she managed to pedal a special trike 4 times, which is a massive achievement. It's just a shame that to buy her a bike it would be $2500!! as it needs to be a special needs trike. Izabel has attended school for an hour a couple of times with Zoe and she loves it. She isn't able to do much as she gets cognitive fatigue, but she can now write her name as well as writing mum & dad. Unfortunately, Izabels treatment has left her with hearing loss so she now has hearing aids which are working well, her eyesight has also been effected & her left eye will need surgery. She has swallow damage too which may be permanent and she is at risk of aspiration. Izabel doesn't let this get in her way of doing the things she wants to do. She is enjoying her beautiful little life as much as possible, she's enjoying gardening, arts & crafts and her kittens keep her amused too. None of this would be possible if it wasn't for her wonderful parents, who work relentlessly to help Izabel in her recovery. The family have had a weekend break away together and have had days out together making memories. Zoe takes Izabel to a hydrotherapy pool which she pays for out of the fund money donated. But she still needs a suitable wheelchair and they now need an adapted car with ramp as zoe is currently lifting Izabel in and out herself, which is putting great strain on her back. This is going to be $thousands Unfortunately, they don't receive specialised equipment that easily, most people have to buy themselves and so the family are having to 'make do' with what they have, which isn't good, especially when all the specialists helping Izabel say her chair isn't suited to her needs? It doesn't make sense to me that not one specialist is organising a replacement for her. Adam has returned to work full time now and they are trying to save for Izabel's new chair etc, which is virtually impossible. I feel the family are still in need of your support and I urge anyone to please share Izabel's page in the hope that we might be able to raise some more funds to put towards some much needed equipment. If you are able to donate then please do so, even the smallest amount helps. You can also see regular posts on Izabel's progress on her Facebook page. https://m.facebook.com/Izabelsullivan/ Please keep Izabel in your thoughts and prayers as she continues to recover. Izabel's journey hasn't finished, it has only just begun. Xxx

Update

18 Jan 2017

Thanks for donating to my Fundraising Page Izabel's Journey. Together we raised $8,254.00 for Izabel Sullivan . I am really grateful for your generous help in reaching my goal. Kind Regards, Louise

Update

31 Dec 2016

Hello Sorry it has been a couple of months since the last update, it has been a very busy time for everyone and Izabel hasn't been very well at all. We hope you have all had a lovely Christmas. Izabel has now finished her 3rd & 4th round of chemo, unfortunately, there were a lot complications for her to deal with. Round 3 was very harsh, Izabel didn't recover as quickly as planned and has needed several transfusions, she then had an allergic reaction to them which meant she has had to stay in hospital whilst on anti biotics to fight infections in her blood. Izabel was extremely poorly and at this point Zoe wanted to stop the chemo, fearful that Izabel wouldn't pull through, but the oncologist advised there could be that 1 cell left so the risks were far too high. Onwards to the 4th and last round with barely a break in between. Izabel had another reaction and another stay in hospital on antibiotics. She then developed 'Red man syndrome'. This terrified the whole family as they hadn't been told it was a possibility that this could happen and what the allergic reaction would look like. As round 4 began Zoe and Adam were told by the oncologist that if the cancer returns there is nothing else they can do!!! This was Izabel's last chance. It has been an extremely tough time for my sister and her family, not to mention how tough it has been for our little star Izabel. She's still fighting hard as she always does, but there have been a number of times when we didn't think she would pull through, but she has and I truly believe she will continue to. Whilst Izabel was in hospital her big sister Jazmin was rushed in and had to have emergency surgery to remove a cyst and her appendix, this was the week before Christmas, luckily both girls were allowed home 2 days before Christmas Day and the family were able to enjoy their Christmas together. Unfortunately, Izabel still can't sit up, she can't swallow, and has to have thickened fluids. She's still smiling tho bless her. No equipment todate has been offered to the family for Izabel , not even a chair or walking frame, it's actually shocking. They can hire equipment, as and when the occupational therapist agrees it's ok to. So I still need to raise as much as possible to help to provide Izabel with the much needed equipment that she needs. My beautiful niece Izabel, her sisters, brother, mum and dad have been, and are still going through a living hell, every day is a new one and Izabel is fighting hard and winning. She's a total inspiration to us all. Izabels end of treatment MRI is on 3rd Jan so please spare a moment to say a prayer that it will be clear. She has been given an 80% chance of survival for 5 years and the family have been advised secondary cancers will occur. No one knows what will happen after 5 years. Every day is hard, but every day is also a blessing, life is hard, life can be short, please live life and enjoy it. We will get to the end of the journey and Izabel WILL win. She's a little warrior and the bravest little girl I know, it's a total privilege to have her as my niece. I love her to pieces. 2017 is going to be her year. Please share Izabel's story. I hope, this will not only help raise much needed funds but also help raise awareness of childhood cancer. I will continue to update as much as I can but in the meantime, please share Izabel's journey and have a Happy new year. May you all have health and happiness in 2017, Xxxxx

Update

15 Oct 2016

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update

Hello Its time for another update Izabel had just finished her 2nd round of chemotherapy. It's been tough but she is battling on like the little star she is ?? yay go Izzy!! She amazes me every day. Izabel has had to have more blood transfusions as well as platelet transfusions. Unfortunately, due to some of the hospital staff's lack of compassion and experience this hasn't been great for Izabel, which upsets everyone hugely. Regardless of this she is fighting strong and is now taking it in her stride, amazingly she's still laughing and smiling. Izabel has to have regular hearing tests as she may lose her hearing, but, so far so good, she's ok. So keep your fingers crossed this continues to be the case. The family have purchased a portable spa for Izabel from the fund money to use indoors so they can maintain her physiotherapy personally as she only gets 30 mins a week from the hospital. She absolutely loves it. The warm water also helps soothe her aching body. So, she's half way through her chemotherapy which is due to complete around Christmas/new year time. She will have another lumbar puncture and MRI scan on 1st November and again after each round of chemo to check there's no regrowth. I'm immensely proud and in awe of this little lady. She's kicking cancer to the kerb where it belongs and is totally winning It's been a long, tough battle so far, but never ever underestimate the strength this little princess has. She has quite a road of recovery ahead of her yet, but I know with the sheer determination she has, as well as her family supporting her, she's going to get through. 2017 is IZABELS year to shine. Please continue to spread awareness and please continue to share Izabel's fund page. We are still in need of a lot of equipment for Izabel to be able to have the correct rehabilitation at home. A special wheelchair for Izabel is approx $18,000. This would enable her to be more comfortable and be able to venture outside on more family outings once her treatment is finished. If you would like to see more photos of Izabel's Journey she has a Facebook page you can view: https://m.facebook.com/Izabelsullivan/ I will continue to send updates, thank you for your support xxxx

Update

14 Sep 2016

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Thank you for your donation

Thanks for donating to my Fundraising Page Izabel's Journey. Together we raised $6,799.00 for Izabel Sullivan . I am really grateful for your generous help in reaching my goal. Kind Regards, Louise

Update

14 Sep 2016

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Thank you for your donation

Thanks for donating to my Fundraising Page Izabel's Journey. Together we raised $6,674.00 for Izabel Sullivan . I am really grateful for your generous help in reaching my goal. Kind Regards, Louise

Update

23 Aug 2016

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IZABELS Journey - update

Hello Sorry for the delay in updating but Ive been very busy this last month with Izabel's fundraising Day in the UK, which raised a massive £1700. This will go towards Izabel's rehabilitation. Thank you to everyone who supported this event. Izabel has also had a very busy month. Radiation has finally finished and she has been very tired and unfortunately hasn't been very well lately with an infection. I'm pleased to say that she is on the mend now though, she's such a little fighter. Izabel isn't impressed with her Physiotherapy, bless her, it's hard work for her when she's so tired but she shows so much determination every time. The family have had an early birthday for Izabel as she is starting chemotherapy on 7th September. They had a treasure hunt & went to pottery playroom. During the last month Izabel has also visited the zoo for an hour and has been bowling. Izabel has selective mutism and the hospital haven't yet given an 'official' diagnosis so the family cannot get any 1:1 help until then. It's been quite a fight for Izabel's parents to get professional support for Izabel. They are also struggling to get Izabel a suitable wheelchair, she needs specialist equipment for her daily needs as well as to help her continue to have days out, which boosts her morale, so please continue to share and support Izabel's Journey and help us reach our goal. It's important to also know that one thing Izabel does every single day is 'smile', no matter what. Her family make sure of it. She is fighting cancer so hard, but She has fun, her smile is angelic, she's beautiful, precious and strong. She WILL win this fight!!

Update

15 Jul 2016

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GREAT NEWS

***GREAT NEWS*** Izabel has just spent her first week at home, only returning to outpatients at PMH for her daily radiation and although Izabel is tired she's showing real strength and coping well. The Sullivan family are together at last and although there were initially some ups and downs with her feeding tube, they have had a great week with Izabel. Zoe is practically a qualified nurse and is caring for Izabel 24/7. And who better to have care for her other than her mummy. They have been to the park, made biscuits, done painting and gluing and the best part of all is Izabel played 'snap'. She's doing so so well, she's moving her arms more and more and is trying to wave, she's making progress every day. Although Izabel still has to have her feeding tube to sustain her, she has been trying all sorts of different foods to eat; fruit, hotdogs, ice cream, chips, cereal & toast. Dymocks book store sent her a package of books and teddies which made her day. Especially as it had a Peppa pig in there for her, which she slept with all night. Izabel has had 18/30 sessions of radiation, so she's over half way there and then she can have a break before her chemo starts. She's certainly got her mummy's fight in her, she's kicking cancer to the kerb where it belongs. I would like to take this opportunity to once again thank each and every one who has donated to Izabel's journey fund, both in the UK and AUSTRALIA. Without your support Izabel wouldn't of been able to come home as an outpatient and for that we are forever grateful xxx

Update

05 Jul 2016

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weekend at home

My beautiful niece Izabel had a wonderful weekend at home. She made choc brownies with her big sis Jade. She's back today to PMH, port refitted ready for this weeks radiation. We had a lovely chat on face time with her, she trying hard with her speech and said her cousins names - Maisie & Tommy. We were delighted. She's lost her hair now, but I think everyone will agree she looks as beautiful as ever, and with that smile too, she's just gorgeous. Love her to bits ????????????????????

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DONATIONS4

Lauren McCready

Mon, 14 Aug 2017

$ 30

Louise Jones

Tue, 8 Aug 2017

$ 210

Corinne Campbell

Mon, 26 Jun 2017

$ 100

Love you all, Ebony & Corinne XX

$ 100

Nicki

Wed, 18 Jan 2017

$ 25

So glad Izi is through the chemo. Delighted the MRI was clear. There is still a long journey ahead still. You are an amazing family. xx

$ 25

RAISING FUNDS FOR

Izabel Sullivan Izabel, my beautiful 7 year old warrior princess niece was diagnosed with medulloblastoma brain cancer when she was just 4! Her journey has been and still Is a long one. She has fought hard and continues to fight everyday with a smile on her face she lights every room she enters. pls share x

FUNDS BANKED TO:

Izabel Skye Sullivan

Campaign Creator

Louise Jones

Clarkson, WA

Created May 2016

cancer

Enter your email to get updates

$365 raised

From 4 Donations

TARGET $50,000

Please support this cause

AUD

RAISING FUNDS FOR

FUNDS BANKED TO:

Izabel Skye Sullivan

Campaign Creator

Louise Jones

Clarkson, WA

Created May 2016

cancer