I'm in a lot of medical and financial strife right now. Unfortunately, NDIS, private health, and Medicare (even on a concession card) in no way cover my health and medical expenses at the moment.
The absolute TL;DR is that I have a cluster of complex diseases that without expensive, multi-disciplinary management will mean a very painful, undignified death that with every day of deterioration gets much faster approaching. My medical expenses outstrip my pension income by almost twice alone. Although rationing medication, appointments, treatment, and nutrients have helped me to reduce that a little, it has definitely come at the expense of my health and quality of life.
Unfortunately, the battle with NDIS has been incredibly costly, learning the hard way that this system has way too much money involved for people to not act in unethical ways and the time reassessments for more funding and support is taking so long that any resources I've been able to somehow tap and make use of in the past are completely gone, tapped out, unavailable, or unaccessible.
I'm burnt out from fighting NDIS constantly just to try to have them listen to what more than a dozen specialists are saying. I'm exhausted. I'm in agony, almost constantly. I'm incredibly scared. I feel very alone, and I'm scared to reach out a lot after what's happened in the past (I'm still broken about what happened with the fundraiser, and so many people not even being informed the money didn't go to me after such generosity).
I'm posting this because I truly am feeling hopeless and out of my depth and have hit a point where trying to reach out, no matter how painful and embarrassing I find it, is preferable to the alternative.
My medication cost alone is over $900-1200 a month. Medical treatment, tests, insurance, transport, consumables, and nutrition average $2,500-3000 a month, and I'm in high need of about $15,000 of dental work, as any kind of dental infection could kill me now.
This was hard.
Love Gob
I'm sorry I don't have more mate. Your new friend Crazy Monkey 85