Fleur's Final Bucket List

Our youngest daughter Fleur is diagnosed with STAGE IV TERMINAL BRAIN CANCER, and she underwent a live saving brain surgeries, barely survived the ordeal, and came out of an induced coma with severe brain damage and complete paralysis of the right side of her body. Specialised treatment with targeted drugs, and intensive therapies brought Fleur back to us, and she recovered 60-70% of her mobility.

September 2020, Fleur had a surgery to remove another NEW TYPE aggressive tumor. She received radiation therapy in October and November to slow the tumor growth.

From late December Fleur has been suffering from bacterial infections, which caused a lot of grief and worsened her condition badly.

About a month ago the infections caused major issues, and the prosthetic skull plate had to be removed. We also had to stop her treatment, resulting recently in regrowth of the cancer. Her health deteriorated very fast, emergency shunts had to be placed, and in consultation with our oncologist Dr Gottardo we’ve decided that Fleur participates in another clinical trial with a new type of precision drug. Over the last week we’ve seen meaningful progress, but the outcome is very uncertain as this is a very novel treatment.

So….. Fleur's clock is REALLY TICKING, more than ever not knowing that we are dealing with. Please listen and support our cause.

It is our families wish to assure Fleur is fulfilling some of her dreams, seeing some exciting things like a DISNEY musical or event, and we are trying to organise this now through sponsors and volunteers.

We’ve also decided that ALL DONATIONS we receive will go to Pirate Ship Foundation, in support of brain cancer research through the Telethon Kids Institute, and all the other kids in a similar situation as Fleur.

For more updates and details please visit our Facebook page https://www.facebook.com/helpfleursurvive