I have to admit that didn’t even know that Vanishing White Matter Disease existed until some pretty amazing friends, Ange and Dickie Turner, told me about Chloe. I certainly didn’t think I would ever walk 100km in two days until they challenged me to do it in order to help them take action to help Chloe and others like her. The 100km seems insurmountable right now (when I’m still working my way up to 20km at a time!) but it’s nothing compared to the challenges that people with these sorts of rare conditions face. It’s a privilege to support this initiative - I am so proud of the Turners for what they are doing and I’m excited to be a part of it. We’d love for you to walk with us or donate if you can.