Nyra's Journey with Aicardi Syndrome
$35 raised
TARGET $50,000
Please support this cause
$
AUD
About
My niece Nyra is 4 weeks old and we have just found out she suffers from Aicardi Syndrome and is also blind in her left eye. Aicardi Syndrome is a very rear disorder that only occurs in females. She is going to be prone to seizures and her development will be limited, she may never talk or walk. I am fundraising to help with Nyra's care and therapy as she gets older. There is no cure for Arcardi Syndrome and I just want my niece and sister to have a life without restrictions.
Fundraising For
Nyra - costs associated with Aicardi Syndrome
What is Aicardi Syndrome? Aicardi syndrome is a very rare disorder. Researchers estimate that there are approximately 4,000 affected individuals worldwide. People with Aicardi syndrome have absent or underdeveloped tissue connecting the left and right halves of the brain.Funds Banked To
Miss Toni Allan
SINCE May 2017
2
Donations
$35 raised
TARGET $50,000
Please support this cause
$
AUD
Fundraising For
Nyra - costs associated with Aicardi Syndrome
What is Aicardi Syndrome? Aicardi syndrome is a very rare disorder. Researchers estimate that there are approximately 4,000 affected individuals worldwide. People with Aicardi syndrome have absent or underdeveloped tissue connecting the left and right halves of the brain.Funds Banked To
Miss Toni Allan
SINCE May 2017
2
Donations
Sasha if you need anything even an ear to vent too, please don't hesitate. I'm around most of the time. Much love x