Osteogenesis Imperfecta Society of Australia (Brittle Bones)
The OI Society of Australia is a support group of and for persons with Osteogenesis Imperfecta (Brittle Bones) and their families.
Our aims are:
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Offer information & support to individuals and families affected by OI
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Encourage and support research
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Provide public and professional education to create awareness of OI
We connect newly diagnosed families with medical professionals and other OI members to ensure that they have the latest information and access to a friendly support network.
We provide state based opportunities to share local information and meet members through our state representative network.
Our major activity is our biennial national conference for members to meet and reconnect and share stories with each other, as well as to learn from health experts about updated treatments and research related to OI.
We hold Wishbone Day events across Australia in May each year.
We provide a website and private facebook groups to provide information and support connections.
We advocate for the OI community in health policy development including the NDIS.
The OI Society of Australia is a 100% volunteer run organisation with no paid staff or government funding.