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September 18 2014

7 yr old Seb with ROHHAD Syndrome

7 year old Seb has one of the nation's rarest diseases #ROHHAD. He can't stop eating putting on 50 kilos in 2 years but now his local community is rallying to save him.

ROHHAD Syndrome

Read the story or see the campaign Sebastians Fight for Life to support Sebastian.